Hyper mobility syndrome
by C
My bad back started when I was 15. But then it only lasted for two months. It was my birthday when I started experiencing awful pain in my back. My parents said it would pass within the next couple of weeks. I probably just did a wrong movement they said. Weeks went by, and I became more sloppy in what I was doing. I did do sports at the time, I didn’t stop. It was obligatory to do sports in our school. By the time October arrived, I couldn’t get out of my chair, with excessive pain. But most of the bad pain was at night. I didn’t really feel it in the morning, because I was laying flat when I was sleeping. Though the back didn’t improve, I went to see my local GP. She examined me, and referred me to a osteoporotic. There they did all kinds of examinations on me. I was told to get an MRI scan.
I ended up getting one, the results would come back a week later. All that waiting was bad, so after the MRI scan after two days, I couldn’t move anymore, despite all the painkillers I was taking. It stopped working for some reason. So I went back to the doctor, because I needed someone to help aid me in walking. The doctor put me immediately on the IV line with cortisones flowing into my blood. It helped reduce the intensity of the pain, and I could move more easily, but it didn’t stop completely. I was on the IV for ten days. After that, I spent two weeks in bed. Not that it helped me much. It just didn’t. The MRI results were bad. I had a slipped disk in the regions L5/L4; L5/S1; (L4/L3; L1/L2 these weren’t that bad). I don’t know the reason why I had slipped disks. After the IV line, about a month later I went for physiotherapy. The first session was probably the most painful. Maybe, but still the lady was not friendly at all. Though I must admit the surprise I had in how powerful such a little lady was. Anyways after therapy. She immediately ordered another X-ray. Said there was something wrong. She was the one who said I had Scoliosis and hyper mobility syndrome. Had the x-ray later that week. Got the results the same day. Nothing what they could explain. I started experiencing numbness lack of movement in my arm. By the 4th day, there was this weird feeling. The whole left arm was literally 0 degrees Celsius. I couldn’t move it. Anyone touching my arm, it felt like it was burning, and the whole pain would crawl up the arm, even the slightest movement, or the slightest touch, or even my clothes touching it. No matter how cold my arm was, the touch put my arm on fire. I couldn’t put my clothes on. This was in December. My brother had to help me into my coat, my parents had to help take my shirt and pants of. I was too weak to do anything on my own. We called a ‘new’ doctor. And he then diagnosed me with severe lordosis, muscle imbalance. The time it would take to heal everything he said would be two years. He said I was still young.
I am now 8 months later. My back still hasn’t improved since August. When it all started, I am going to see a new specialist next week, because the physiotherapy I am having works only temporary and it causes concern for him. Like clockwork I wake up every morning at 3am with severe back pain. Same at 5 in the morning and at 1. Cause the pain in my leg, and leg is so bad. I am 17.5 and I’ve become rather weak, and no one knows what to do anymore. My parents blame it on the cold, and my bad posture, my doctor says its more then just a bad posture. I have hyper mobility syndrome which people tend to get when there muscles are over flexible and often when there feet are flat on the ground with no curves. I cannot stand longer then 5 minutes still, I cannot sit down without a cushion.
All I will say is do the exercises and things will improve a bit better, and never ever slouch its one of the reasons why I have this. Though the back pain I have is inherited from my mum’s family. Don’t ever give up hope.
